End the Legacy is an organization by and for people with genetic ALS and FTD.
"Virtual Support Groups, led by Mary Holt-Paolone, MSRN, Mental Health Specialist at the MDA/ALS Center of Hope at Temple University.
All groups are hosted via Zoom on Fridays. We offer a free-flow conversation style, where participants can share experiences and resources and connect with others who understand in a safe and supportive environment.
Caregiver Support Meeting
Continuing Hope Bereavement Group
PLS Support Meeting
To join a group or receive more information please email us at info@alshopefoundation.org and indicate which support group you are interested in on the subject line."
Source: End the Legacy