End the Legacy Support Groups

End the Legacy  is an organization by and for people with genetic ALS and FTD.

"Virtual Support Groups, led by Mary Holt-Paolone, MSRN, Mental Health Specialist at the MDA/ALS Center of Hope at Temple University.

All groups are hosted via Zoom on Fridays. We offer a free-flow conversation style, where participants can share experiences and resources and connect with others who understand in a safe and supportive environment.

Caregiver Support Meeting

  • For adult loved ones and adult children, spouses, friends, significant others, etc.
  • 1st Friday of each month from 11:00AM to 12:00PM ET

Continuing Hope Bereavement Group

  • For those who have lost a loved one within the past 2 years
  • 2nd Friday of each month from 1:30PM to 2:30PM ET

PLS Support Meeting

  • For people living with PLS
  • 4th Friday of each month from 11:00AM to 12:00PM ET

To join a group or receive more information please email us at info@alshopefoundation.org and indicate which support group you are interested in on the subject line."

Source: End the Legacy