We envision a future free of MAPT FTD

Frontotemporal Dementia (FTD) is the most common form of dementia for those under 60. Under-diagnosed and currently incurable, FTD can be caused by a mutated gene, including the MAPT gene. Cure MAPT FTD raises awareness of the MAPT genetic mutation causing FTD, assists a global network of MAPT families, and advocates for trials that will lead to a cure.

Find out more
Are you a foundation or donor who would like to support our efforts to create MAPT specific trials or gain entry into FTD/ALZ trials that have a TAU connection? 
Does someone you love have the MAPT gene and you're looking for support and answers?
Have you or a loved one just been diagnosed with FTD and are looking for genetic counseling to discover if there is a genetic-component?
If the answer to any of these questions is yes, you're in the right place.

Our Mission


Spread awareness of FTD, of the importance of genetic testing, and of Tau/MAPT.


Advocate for MAPT-specific trials and access to other FTD gene-specific trials.


Find, and connect to, the growing global network of MAPT families and researchers.

In the News

The Vanishing Family

In 2023, one of the founding families of Cure MAPT FTD was featured inarticle by award-winning journalist and New York Times-bestselling author, Robert Kolker.

Read the full storyListen to the NYT podcast

Our Stories

We want to hear from you!

Are you interested in genetic testing?MAPT trials? Support and resources for FTD? Contact us and we'll get back to you quickly.  


Want to hear from us?

We're on the front lines of fighting MAPT FTD. Want to keep up-to-date with what's going on in the efforts to cure MAPT FTD? Sign up for our news and newsletter.

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