Translate
Families fighting for a cure
We envision a future free of MAPT FTD
Buy our merch!
Donate

News, Media and Events

Event
UPCOMING

Friday Families Meeting: with speaker Katie Brandt

Hear from speaker Katie Brandt, a global advocate, national dementia care expert and Director of Caregiver Support Services at Massachusetts General Hospital Frontotemporal Disorders Unit.

Published:
Event date:
February 27, 2026
Mar 6, 2026 2:30 PM
Friday Families Meeting
ALLFTD Data
arrow pointing up and right diagonally
Media
UPCOMING

Dr. Sally Temple: Presentation on Brain Organoids for FTD

Brain Organoids: A human cell model to develop drugs for Frontotemporaldementia (FTD)-tau

Published:
Event date:
Friday, December 5, 2025
January 29, 2026
Sign Up
ALLFTD Data
arrow pointing up and right diagonally
Media
UPCOMING

Call for submissions: npj dementia - The Human Connection collection

Linde Jacobs and Tanya Steel are guest editors of an upcoming collection in npj dementia - The Human Connection. Submissions due by Aug 7, 2026.

Published:
Event date:
November 30, 2025
Read More
Sign Up
ALLFTD Data
arrow pointing up and right diagonally

Listen to our stories

Read about our FDA Listening Session

More MAPT Stories

Linde's Story
Ansel's Story
Tanya's Story
Read More
Have you been featured in a publication or media?
If you are a Cure MAPT FTD member or have been spreading awareness about MAPT FTD, we want to feature you here!
Submit your media
arrow pointing up and right diagonally
Do you have a MAPT FTD story to share?
We want to share your story! Fill out our form to share your story. Anonymous submissions are accepted.
Share your story
arrow pointing up and right diagonally

Resources we offer

Support Resources

Are you a family with MAPT?

We offer educational resources, explain options for genetic testing, support group options, and information on FTD resources around the world.

Get support
arrow pointing up and right diagonally
Get support
arrow pointing up and right diagonally
Research Resources

Are you a FTD reseacher?

We want YOU to study MAPT FTD! We seek to foster collaboration, share breakthroughs, and accelerate discoveries that will lead to treatments, and ultimately a cure, for MAPT FTD.

Get information
arrow pointing up and right diagonally
Get information
arrow pointing up and right diagonally

A heartfelt thanks to our sponsors

Logo for the company AlectorEveryLife Foundation LogoLogo from The Bluefield ProjectLogo for Rare Village

We want to hear from you!

Are you interested in genetic testing? MAPT trials? Support and resources for FTD? Contact us and we'll get back to you quickly.  

hello@curemaptftd.org
Contact Us

Want to hear from us?

We're on the front lines fighting MAPT FTD. Want to keep up-to-date with what's going on in the efforts find a cure? Subscribe to our monthly newsletter to receive updates directly to your inbox!

About UsOur TeamScientific Advisory BoardOur StoriesContact Us
For FamiliesSupport ResourcesResearch ParticipationAbout MAPT FTDNewsletter
For ResearchersResearch ResourcesFDA Listening Session
EventsOur EventsFTD Awareness Week 2025Fundraising

Change Language:

EnglishSpanishFrench
© 2025 Cure MAPT FTD. All rights reserved.
EIN: 93-2513996
Privacy PolicyCookie Settings