Linde Jacobs presents moving story to UCSF on Genetic FTD: Fighting for a Future

On November 18th, Cure MAPT FTD co-founder and advocate Linde Jacobs spoke movingly at UCSF to a group of researchers on genetic FTD. Linde spent years supporting her mother, who carried a MAPT FTD gene. Now at risk of developing FTD herself, she is a powerful advocate for change in the scientific community.

Published:

November 25, 2024

On November 18th, Cure MAPT FTD co-founder Linde Jacobs spoke movingly at the University of California at San Francisco Memory and Aging Center Lecture Series on genetic FTD. Her presentation centered on how the disease has impacted her grandmother, mother, sisters and herself.

Introduced by Dr. Claire Clelland, one of our Scientific Advisory Board members, the physicians clearly found inspiration by her story. One of the most exciting moments of the event? Dr. Clelland mentioned that FTD might be one of the first neurodegenerative diseases to be cured with genetic therapies.

See highlighted screenshots from the event below:

Linde's introduction on her family & experience with MAPT FTD

Linde's mom Allison, who started having FTD symptoms at 50 years old

How Linde's family was impacted financially from MAPT FTD

The legal impact of MAPT FTD to Linde's mother

To learn more about Linde's story, a familiar story to many who develop MAPT, watch the following video from a talk given at Global Tau 2024