About

We are a global team of families who have been affected by MAPT FTD, in most cases for many generations. We are driven to ensure that future generations will be free from the challenges and devastating loss that we have endured. We have members in Canada, England, France, New Zealand, and the US.

Scientific Advisory Board

Meet our board of top scientists and cutting-edge leaders in frontotemporal dementia (FTD) research.

Amy Rommel

PhD, Rainwater Charitable Foundation

📍 Fort Worth, TX
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Dr. Kenneth Kosik

Neurologist, Biologist, UCSB

📍 Santa Barbara, CA
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Dr. Bradley Boeve

Neurologist, The Mayo Clinic

📍 Rochester, MN
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Dr. Adam Boxer

Neurologist, UCSF

📍 San Francisco, CA
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Sally Temple

PhD, Neural Stem Cell Institute

📍 New York, NY
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Dr. Claire Clelland

Neurologist, UCSF

📍 San Francisco, CA
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Executive Team

Meet our dedicated team of leaders in frontotemporal degeneration (FTD) advocacy.

Amanda Dawson

Brand & Communications

📍 Portland, OR
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Andrea Furgiuele

Brand & Communications

📍 Toronto, ON
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Annika Roll

Brand & Communications

📍 Denver, CO
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Barb Dawson

MAPT Family Outreach & Support

📍 Toronto, ON
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Barb Frommell

Governance

📍 Denver, CO
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Linde Jacobs

Research Advocacy

📍 River Falls, WI
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Marian Grems

MAPT Family Outreach & Support

📍 Maumee, OH
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Tanya Steel

Marketing & Communications

📍 Sarasota, FL
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