About

We are a global team of families who have been affected by MAPT FTD, in most cases for many generations. We are driven to ensure that future generations will be free from the challenges and devastating loss that we have endured. We have members in Canada, England, France, New Zealand, and the US.

Scientific Advisory Board

Meet our board of top scientists and cutting-edge leaders in frontotemporal dementia (FTD) research.

Amy Rommel

PhD, Rainwater Charitable Foundation

📍 Fort Worth, TX
Read Bio

Dr. Kenneth Kosik

Neurologist, Biologist, UCSB

📍 Santa Barbara, CA
Read Bio

Dr. Bradley Boeve

Neurologist, The Mayo Clinic

📍 Rochester, MN
Read Bio

Dr. Adam Boxer

Neurologist, UCSF

📍 San Francisco, CA
Read Bio

Sally Temple

PhD, Neural Stem Cell Institute

📍 New York, NY
Read Bio

Dr. Claire Clelland

Neurologist, UCSF

📍 San Francisco, CA
Read Bio

Executive Team

Meet our dedicated team of leaders in frontotemporal degeneration (FTD) advocacy.

Amanda Dawson

Brand & Communications

📍 Portland, OR
Read Bio

Andrea Furgiuele

Brand & Communications

📍 Toronto, ON
Read Bio

Annika Roll

Brand & Communications

📍 White Plains, NY
Read Bio

Barb Dawson

MAPT Family Outreach & Support

📍 Toronto, ON
Read Bio

Barb Frommell

Governance

📍 Denver, CO
Read Bio

Linde Jacobs

Research Advocacy

📍 River Falls, WI
Read Bio

Marian Grems

MAPT Family Outreach & Support

📍 Maumee, OH
Read Bio

Tanya Steel

Marketing & Communications

📍 Sarasota, FL
Read Bio