Welcome to the Cure MAPT FTD research community, where we are dedicated to advancing scientific understanding and therapeutic innovation for MAPT FTD. We seek to foster collaboration, share breakthroughs, and accelerate discoveries that will lead to treatments—and ultimately a cure—for MAPT FTD.
Explore opportunities to access de-identified clinical datasets, biomarker samples, and genetic materials from MAPT FTD cohorts.
We share RFPs and announcements from research funders committed to research and treatment discovery for FTD.
Our FDA Patient Listening Session gave MAPT FTD persons and caregivers a direct platform to share their lived experiences with federal regulators and the research community. Their open, unfiltered insights highlight the real-world challenges, needs, and hopes of those impacted by this rare genetic disorder.
For researchers, these perspectives are essential to informing meaningful endpoints, guiding clinical trial design, and setting priorities for new therapies.
We want to support you with any initiative that can advance research toward finding a cure or treatment for MAPT FTD. To request a special research project or ask us a question, send an email to:
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