RARE Advocacy Summit

Global Genes brings together a massive assembly of rare disease patients, caregivers, advocates, healthcare experts, researchers, partners, and supporters at the RARE Advocacy Summit. This unique event offers an unmatched chance to establish significant relationships within the rare disease community, setting the stage for future collaborations. The summit sessions furnish participants with updates on the latest rare disease advancements, effective advocacy techniques at both individual and organizational levels, and practical strategies they can apply immediately to drive progress.

The 2024 RARE Advocacy Summit is scheduled to take place September 25-27 in Kansas City, Missouri.

For more information, visit the RARE Advocacy Summit website.