Barbara Frommell


Barb co-founded Cure MAPT FTD in 2023 when her family’s long-time struggle with MAPT FTD was featured in The New York Times Magazine article, “The Vanishing Family,” by Robert Kolker.

Barb is a proven leader with over two decades of experience and demonstrated success in the public, private and non-profit sectors at the intersection of public relations, policy, real estate, health and the environment. Currently she helps lead government affairs and corporate responsibility efforts for a national publicly traded real estate company, and she is active on several non-profit boards and committees.

Earlier in her career, Barb developed strategic cross-sector partnerships and successfully raised over $30 million to fund and implement a variety of community development and sustainability projects in underserved urban areas – including community parks & gardens, public health programs, pedestrian and bicycle infrastructure, affordable housing, a food cooperative and renewable energy systems.

Barb has a Master of Urban and Regional Planning degree from the University of Illinois in Champaign-Urbana and a Bachelor of Science degree in Biological Science from the University of Notre Dame.

With a strong sense of urgency, Barb eagerly shares her executive leadership, partnerships and fundraising skills to help advance Cure MAPT FTD’s mission. Her passion and dedication to finding a cure stems from her concern for her loved ones and for all families struggling with this cruel and devastating disease.

During her limited free time, Barb enjoys adventuring in the Colorado mountains with her husband, two young-adult children and her English Springer Spaniel, Enzo.