Families Fighting for a Cure
We Envision a Future Free of MAPT FTD

News, Media and Events

Media
UPCOMING

Linde Jacobs featured in CBS News, Minnesota

Her mother gave her the genes for a rare form of dementia, but a Minnesota woman is fighting back. Read the full story in CBS News Minnesota

Published:
Event date:
Monday, June 2, 2025
November 20, 2025
Media
UPCOMING

NYT Feature: Fighting to Avoid Her Mother's Fate, for Her Daughters' Sake

Read our co-founder Linde Jacobs's story featured in the New York Times by author Virginia Hughes about her experience with MAPT FTD.

Published:
Event date:
Sunday, December 22, 2024
November 20, 2025
Media
UPCOMING

Dr. Sally Temple: Presentation on Brain Organoids for FTD

Brain Organoids: A human cell model to develop drugs for Frontotemporaldementia (FTD)-tau

Published:
Event date:
Friday, December 5, 2025
March 13, 2026

Read MAPT Stories

Bradford's Story
Annika's Story
Linde's Story

Resources

For families

Are you a family with MAPT?

Educational resources, options for genetic testing, support groups, and FTD organizations around the world.

Get support →

For researchers

Are you an FTD researcher?

We want YOU to study MAPT FTD! Find data, biospecimens, funding and collaborators to accelerate the path to a cure.

Get information →

For clinicians

Are you a healthcare professional?

Get our free FTD Clinician Toolkit: reference guides to help you recognize FTD sooner. Take a 2-minute survey to get access.

Request the toolkit →

Learn About Our FDA Listening Session

A Heartfelt Thanks to our Funders

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We Want to Hear from You!

Are you interested in genetic testing? MAPT trials? Support and resources for FTD? Contact us and we'll get back to you quickly.  

hello@curemaptftd.org
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