We are a global community of families who have experienced the devastating impact of MAPT FTD for generations. Alongside leading scientists, we're accelerating research and building hope for a future without this disease. We have members in Canada, England, France, New Zealand, and the US.
These leading researchers and clinicians guide our scientific strategy, ensuring our efforts align with cutting-edge FTD research.
Dedicated leaders providing governance, strategic direction, and operational oversight to advance our mission.
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Meet the founding members and executive team leaders whose lived experience with MAPT FTD sparked this movement and continues to fuel our determination.
Are you a caregiver, a MAPT mutation carrier, or connected to the MAPT FTD community in other ways? We need your help!
Join our team and volunteer a little of your time and expertise. Fill out this interest for or just reach out to us directly.
We welcome everyone.
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