Families fighting for a cure
We envision a future free of MAPT FTD

News, Media and Events

Media
UPCOMING

Call for submissions: npj dementia - The Human Connection collection

Linde Jacobs and Tanya Steel are guest editors of an upcoming collection in npj dementia - The Human Connection. Submissions due by Aug 7, 2026.

Published:
Event date:
November 30, 2025
Event
UPCOMING

Friday Families Meeting: December 2025

Welcoming Dr. Sally Temple, a valued member of our and the Scientific Director at the Neural Stem Cell Institute. Our last meeting of 2025!

Published:
Event date:
November 20, 2025
Dec 5, 2025 2:30 PM
Friday Families Meeting
Media
UPCOMING

Linde Jacobs featured in CBS News, Minnesota

Her mother gave her the genes for a rare form of dementia, but a Minnesota woman is fighting back. Read the full story in CBS News Minnesota

Published:
Event date:
Monday, June 2, 2025
November 20, 2025
Media
UPCOMING

NYT Feature: Fighting to Avoid Her Mother's Fate, for Her Daughters' Sake

Read our co-founder Linde Jacobs's story featured in the New York Times by author Virginia Hughes about her experience with MAPT FTD.

Published:
Event date:
Sunday, December 22, 2024
November 20, 2025

Listen to our stories

Nuestras historias

La historia de Linde
La historia de Ansel
La historia de Tanya
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If you are a Cure MAPT FTD member or have been spreading awareness about MAPT FTD, we want to feature you here!
We want to share your story! Fill out our form to share your story. Anonymous submissions are accepted.

Resources we offer

Support Resources

Are you a family with MAPT?

We offer educational resources, explain options for genetic testing, support group options, and information on FTD resources around the world.

Research Resources

Are you a FTD reseacher?

We want YOU to study MAPT FTD! We seek to foster collaboration, share breakthroughs, and accelerate discoveries that will lead to treatments, and ultimately a cure, for MAPT FTD.

Un sincero agradecimiento a nuestros patrocinadores

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¡Queremos saber de ti!

¿Le interesan las pruebas genéticas? ¿Ensayos con MAPT? ¿Apoyo y recursos para la FTD? Póngase en contacto con nosotros y nos pondremos en contacto con usted lo antes posible.

hello@curemaptftd.org
Contact Us

¿Quieres saber de nosotros?

Estamos en primera línea luchando contra MAPT FTD. ¿Quieres estar al día de lo que sucede en los esfuerzos por encontrar una cura? ¡Suscríbase a nuestro boletín mensual para recibir actualizaciones directamente en su bandeja de entrada!